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What It’s Really Like to have Fibromyalgia

It used to be that I wouldn’t tell people I have fibromyalgia. It’s unlike having any other disease because you get so much negative feedback on it. I’ve tried to be more open this year about telling people about it because my life really doesn’t make sense unless someone knows. I have been met with:

1. Maybe you aren’t really sick. Maybe you are a hypochondriac.

2. Are you sure you are sick? You don’t look sick.

Dealing with the way other people deal with this disease is probably my least favorite part other than the actually being in pain all the time part. How do you answer those questions?

Fibro Fashion Tips

bootcut I’ve written before about how I’ve changed my fashion sensibilities because of chronic pain. One of the biggest switches was that I started going for boot cut jeans. For awhile skinny jeans were so popular that it was difficult to even find a pair so I held onto the same ones for years. I’ve been noticing in fashion magazines that boot cut jeans are back and I had fun looking through all the styles at Eli’s Western Wear ladies boot cut jeans.

Here are the reasons why boot cut jeans are better for me:

1. They aren’t as tight. Even when I wear the stretchy skinny jeans I can feel more pain in my legs and ankles.
2. They work with all kinds of shoes. I like the look of boots over skinny jeans but again I find this to be extremely uncomfortable and painful. I never know what shoes to wear with skinny jeans except for boots.

I’ve found when I wear jeans that are comfortable I can stay out and about for a little longer and it’s so worth it!

Ready, Set, Go!

I know I wrote over two weeks ago that I was going to start Jillian Michael’s Total Body Revolution. I did but I’m only on Day 4. It’s much more difficult than I had anticipated. I had built up confidence from the 30 Day Shred but that was only a handful of workouts over and over. This has several different workouts a week and since I never master any of them, they all feel like the most difficult ever. I’m going to do better in the coming week. Ready, Set, Go!

For Starters

When I was looking for a guitar I really wanted to get a nice piece that would last for decades. However, I also needed something affordable that would work for starters. I’m really glad that I decided to go in that direction just because I only play it a couple times a year, if that. It has never held me back and I have never needed to upgrade. It was a good purchase even if I don’t play that often just because other people can use it when they visit. Even though I don’t play as much as I like and it does take up space.

The Next Experiment

For my next experiment I’m going to try Jillian Michael’s Body Revolution. It’s a 90 day program but I’m going to take it at the pace that feels right for my body. Some days I may have to skip itnif I’m not feeling well. Other days I may just have to do half a workout. I still saw good results from 30 Day Shred doing this so I’m excited to try the approach again. When I tried to do 30 Day Shred on a 30 day schedule it really wrecked me so I’ll slow down this time.

Couch Shopping

My tip for the day is something that I wish I would’ve learned before I bought furniture. I’ve written before about how there are only one or two chairs in the entire word where I can sit for a long period of time. I only own one of those. I can lay on my couch but even though it’s very comfortable I can’t sit there.

In my current place I have a sofa and a chair. This is fine when it’s just me but I am always laying down on the couch. I really should’ve bought a sectional so I could lay down and several other people could sit on the couch. It will be my next purchase. I need it to fit a fairly small room so I was looking at Small modular sectional sofas at ClubFurniture.com. It’s really the only solution. When I went furniture shopping I tested out couches by sitting on them but I really should’ve tested them by laying down and figuring how much seating space I would need if I was taking up all that extra room.

Losing It

Sadly the title refers to losing motivation instead of losing weight. I think it’s because I don’t know where to go next. I had such success with the 30 Day Shred and then started and stopped several other Jillian Michael’s DVDs. I think if I get the body revolution I’ll see a lot of changes because it’s a 90 day program so no more starting and stopping and jumping around. It is pricey though I keep bidding on it on ebay and never win but I do need that structure over a longer period of time.

Keeping Up With Your Hobbies

I took out my guitar again because I’ve been needing a creative outlet but don’t have a lot of energy. I decided to play the kind of music that I like to listen to and it went better this time. I need to keep up with it but it does need some repairs. I wish I had an electric guitar and a pog but I don’t know how the neighbors would feel about that. There are just so many more options for changing octaves or making it sound like a 12 string that I don’t have on my little acoustic guitar. At least it’s blue though! I’ve lost a lot of my hobbies in the past few years because I’ve been so busy with work and haven’t had any extra energy. Have you been keeping up with any hobbies lately?

30 Day Shred Take 2

I have done experiments with Jillian Michael’s 30 Day Shred before and ways always too sick to finish it. This year I went at my own pace and took 45 days instead of 30. If I was having an off day I just went for a walk instead. I decided to try it again and this time it worked! I lost 7-8 lbs. in those 45 days. I also can see a big difference in my body and the way that clothes fit. My pictures aren’t as dramatic as some I’ve seen on Tumblr. I am wondering which Jillian Michael’s video to try out next to keep my progress going. Any suggestions?

That One Person

If you suffer from a chronic illness I hope that you have that one person that always supports you. For me, that person is my mom especially because I was so young when I got sick. She is always encouraging and supportive. I’m lucky enough to have a whole extended support group of loving people that believe in me. If you’re looking for gifts for your mom you can click here. Who is the person who helps you get through the tough days?