If you suffer from a chronic illness I hope that you have that one person that always supports you. For me, that person is my mom especially because I was so young when I got sick. She is always encouraging and supportive. I’m lucky enough to have a whole extended support group of loving people that believe in me. If you’re looking for gifts for your mom you can click here. Who is the person who helps you get through the tough days?
If you’ve been reading this blog for awhile you know that I have a pretty constant fight with furniture. I have a couch that is comfortable to lay down on and a chair that is comfortable to sit in with an ottoman I can move to either side. This was sufficient but now that I work a longer shift it would be nice to change where I’m sitting. It’s not like I can just go out and buy a new chair. I had to sit in hundreds to find this one. I may have to forgo style and get a really cushy recliner or possibly find an older down filled piece that I can afford. Any fibromites out there have favorite chairs and where did you get them?
I love going to health food stores. I’ve tried (almost) all the natural remedies for fibromyalgia and nothing ever clicked for me. Instead, I take a few supplements and treat a few of the symptoms individually which works better. I love reading about new brands or looking for the best price for boiron products. I’ve found that my sleep cycle and mood are treated the most easily with herbs and supplements. There are other areas that just won’t budge like my skin or energy level but I do like trying.
For the first time in 10 years I have gone back to working a set schedule. I still work at home I just have a set timeframe. I am still making websites but this is a more consistent source of money that I’m very grateful for. I always thought this was impossible because of how sick I am and how sporadic this illness is. However, I realized there are a few hours a day from 5pm onward that while I don’t feel good I’m never at a pain level where I would be unable to work. Granted, it’s only a few hours a day and it’s only the first month. I definitely feel the effect on my body already so I don’t know how it will go long term but for now I’m doing the impossible.
I tend to spend a lot of time thinking about random stuff; especially when I don’t feel well. I love learning about new things. Today I just started wondering how do fog machines make fog? I looked through all the types and products that go into it and it really is a fascinating process. I see it all the time for wedding entrances on TV or night clubs but I’ve never thought about how it actually works. What random thing is on your mind today?
I did the special K challenge where you eat cereal or protein bars for 2 meals a day for 2 weeks. I did substitute their snacks during the day with fruits and veggies. The box said I would lose up to 6 lbs. I didn’t lose any and then gained 2 after stopping. It’s not that healthy because of all the sugar but I really was in the mood to eat sugar without gaining weight. I guess it’s time to try going sugar free again, I think it’s just more difficult to lose weight when you have fibromyalgia.
With the colder weather, traveling, and stress I’m usually sicker around the holidays. This means that I can’t keep up with most traditions. However, one tradition in my family is singing around the piano on Christmas Eve. We all get to pick our favorite carols. There is always a kid screaming into the microphone. If you can’t get your family to go caroling then stay inside instead and try a microphone from musician’s friend. It’s so much fun. It’s the one tradition that I keep every year.
This autumn one of my big goals was to change out my summer bedding for my winter bedding before it gets cold. I know this sounds easy enough but I have to put on an electric blanket and a heavy comforter by myself and fold up the summer bedding. It isn’t a huge job but one that I always procrastinate. Every year it effects my sleep which changes how I feel. This year I got it done early but now it’s a little bit too hot lol. I’m going to try and get to these little changes as quickly as possible because they do make a big difference.
I tend to be somewhat of a dreamer. It helps me to keep my mind off the pain and just makes the day more fun. Today I was wondering what would’ve happened if I had enrolled in middle school band instead of orchestra. I could’ve played the drums and might have been worthy of a ludwig black beauty by now. I would’ve had a different set of friends. Plus it’s an instrument that I think I still could play. I dropped playing the violin because my hands hurt too much. What are you dreaming about lately?
One thing with fibromyalgia is that when something says that clothing is the most comfortable thing in the world; it probably isn’t. There will be a weird seam or the elastic will be too tight or the fabric just seems to burn on my skin.
I saw Carole Hochman pajamas at Soma and then went to ebay so they would actually be affordable. I’ve heard that they are available at Costco too. The ones I bought are modal and are the most comfortable thing I own. I don’t know how long they will last but the elastic isn’t super tight and it’s somewhat soothing on my skin. Go and get comfy you deserve it.