Latest Posts

The Yoga Experiment…Again

I always hear about how yoga is so great for fibromyalgia but every time I’ve tried it, it has been so painful. I’ve even tried yoga for chronic illnesses but that involved sitting on a chair which is incredibly painful.  I’ve really enjoyed Yoga with Adriene on Youtube. I went through the 30 day challenge this year and there are beautiful affirmations for everyday. I was able to make it through all 30 days. I did have to take a few days off but usually with regimented exercise it makes me so sick that I have to take off a lot more time. Then the pain gets a lot worse. I personally didn’t have any pain from this. Some of her other videos are more intense but she usually offers an alternative. She has a methodology of “find what feels good” so I think that’s why there’s less pain for me. Talk to your doctor before starting a new exercise.

Inspiration

I’ve been thinking about what would get me playing an instrument again. I think it has to do with actually liking the music I play. In school I always had to play classical music or whatever was assigned to me. In college I took at home study courses that had a lot of beginning theory. I just wasn’t inspired to practice because I didn’t care about the songs. I was looking around for chesbro music sheet music or something that I would actually like to play. I wish there was a guitar course using popular songs that was still instructional.

Begin Again

I just started a project where I’m doing a lot of writing again. I’ve been busy building websites and doing marketing and it’s been a long time since I’ve really been able to focus on producing a lot of good content. This is my favorite part of working online. I’m a little rusty. It also feels a lot like coming home. I know a lot  of people hate writing or think that it’s better to just hire it out to someone else for a few dollars. It’s something I really love working on and I’m always glad to have the chance to do it.

It’s That Time

Comfort is really important. I notice things like piping on couch cushions or whether there’s two or three cushions because these things can cause me pain. My couch has always been really comfortable and then one day after almost 6 years it was the worst thing in the world. I waited thinking that maybe my pain was just worse that day. I’m going to try to put some memory foam in the cushions because it took such a long time to find this couch. I don’t relish hunting for another one and it was such a stressful process. It may be that time to at least start the hunt again.

What Makes Me Happy

My house is really important to me because I work from home. Plus, when I don’t feel good it’s nice to have a beautiful and organized space to look at. I’ve spent a lot of time making sure that it’s not cluttered and that things run as smoothly as possible when I’m not feeling well. I still have a little bit of work to do. I need a a pots and pans organizer because I don’t have all of the storage space I need for larger items. I really love organizing and it’s something that I spend a lot of time thinking about. It doesn’t help the pain at all but it does make things run  smoother so I’m not spending unnecessary energy dealing with clutter.

Which Instrument Would You Pick?

I think about the day when I chose to go into orchestra often. I always loved the violin and wanted to play it since 3 years old. There was no questioning about whether or not I would be in the band or the orchestra. On some levels I wish I had browsed around or had access to the wwbw store. There is a totally different social life associated with band. I wonder sometimes how just a small difference could’ve changed everything. I am glad that I play the violin but I would’ve liked to experiment a little more with different sounds.

You Don’t Look Sick

I’ve had fibromyalgia for over half my life and I still get this response to the point that I don’t even tell people about it unless I feel like they need to know. Do people always look sick? Do they look like they have a migraine? I think Lyrica commercials have been great to educate people that fibromyalgia is real but there is still a lot of work to be done. Constantly telling me that I was misdiagnoised or not really sick just makes it much more difficult to suffer from chronic pain.

This Year

This year for the new year I don’t have a weight loss goal. I’ m not starting a new experiment or program. I’m just going to do what feels best for my body. Sometimes this may be nothing. Right now it’s yoga. In a few months it could be something totally different. It’s difficult with fibromyalgia just because I don’t have the energy to do anything but I want to cultivate this new awareness of what I really need. So that’s the experiment for this year: no experiment.

There’s Always a Way

When I was younger I thought for sure I would have a job based around music. I never got good enough at the instruments I play to make this happen. However, it’s still one of my great passions. I wish I would’ve branched out more and gone into sound engineering. I may not be the best at actually making music but I am pretty good at hearing it and would love to know more about all of the electronics and brands like behringer. When I was choosing a career I had such an all or nothing mindset. I wish I would’ve known there are other ways to be creative.

My Anthem

My anthem for bad fibromyalgia days right now is fight song by Rachel Platten. It’s one of those songs that I wish wasn’t played quite so much because it loses a little meaning. It’s on the air all the time here. Any other fibromites relate to this?