I am a 27 year old princess with fibromyalgia. I am trying to manage my disease, find a job that I can do from home, & retain my general awesome-ness.
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Today Fibro feels like…

Tuesday, August 31st, 2010

Today fibromyalgia reminds me of one of those emergency broadcast tests on TV. It seems to say “This was a test. This was only a test of your pain system. If you would have actually been on fire you would have smelled smoke and then it would have stopped eventually. We now return you to your regularly scheduled programming”.

Recovery Time

Monday, August 30th, 2010

July was a crazy month for me which had me traveling all around the state to different family functions while still doing all of my work everyday. Granted, my business didn’t get as much attention as it usually does. That was the thing that had to go, but as far as all of the jobs that actually pay the bills, those ones still got done.

I knew that eventually I would have to pay for this. Healthy people say to just rest. However, with fibromyalgia, it takes awhile to get back to normal. Hopefully this is something that people with jobs in healthcare can understand. In this case, it’s been a month and my health still isn’t back to it’s usual pattern. If I break my routine for a day it will take me 2 or 3 days to get better. If I go for several days in a row running at a super human pace then that time really increases exponentially. What is your recovery time for fibromyalgia like?

Holding Pattern

Monday, August 30th, 2010

I would say that my current mood for both yesterday and today is waiting. Sure, waiting doesn’t sound like a mood but if you have fibromyalgia then you probably know what I’m talking about. I’m in pain, a lot more pain then usual. It makes me wish I had spa covers with ya know a spa underneath it to really help me out. I have tried all of my tricks and tips and all I can do is just wait for the pain to go away. Of course with fibromyalgia I never know when that will be, but hopefully soon. I’m not the most patient person in the world but it’s one of the life lessons I’ve learned from this disease, sometimes you can’t do anything except just wait.