I only know about having fibromyalgia from my perspective.Ii don’t know what it’s like to live with someone with the disease, except for myself. I think it would take a lot of time just to communicate whether it was a good day or a bad day. When I’m having a good day, rare though they are, I suddenly want to go do all the fun things that usually I turn down because I don’t have the energy for it.
I guess I’ve trained people about all the things I can’t do, or I get tired of even being asked honestly. However, when a good day comes round I want to go have fun before the pain sets in again. That must be really confusing to most people. How does your life change when you have a good day?