Dear Non Fibromites,
If I hesitate when you ask me to perform a simple task like going shopping with you, there is a reason. If you ask me to go do something social and I say no there is probably a reason. It’s not that I don’t like you, it just costs too much. I’m not even talking about monetary amounts. It just upsets the careful balance of my life in a very real way.
First off, spending times in large crowds is rarely fun for me. I have to wear shoes, that hurts. Then I have to stand up for a long time, that hurts. This means that the next day I’ll probably be really sick, maybe even too sick to work. Then I’ll have to spend the rest of the weekend trying to catch up on work which will just make the fiber flare angrier. So thank you for asking, but please understand if I say no.
Sincerely,
Sarakastic
November 17th, 2009 at 3:06 pm
So well said. I went shopping on Saturday - promised the kid. Two hours in a mall? Almost killed me. OK, not really but it certainly put me back in bed for several hours more.
Still, sometimes I think we need to choose the pain. I know that sounds whack but if we keep hesitating, I’m afraid life will pass us by.
No easy answers.
November 18th, 2009 at 10:08 pm
Hi Sarakastic,
Thank you so much for your letter to us “normals.” My sister has FM and I’m reading as many blogs and joining as many forums as I can, in an effort to understand. She gets frustrated with me and letters like yours are very helpful. Would you mind if I posted it on our forum at fibro free life? I’m just thinking of a guy on there whose wife has fibro, and apparently they’ve been fighting a lot and he feels really bad about not saying/doing the right thing…i think this letter would help him.
Sincerely,
Kivlan