Thyroid Problems & Fibro
Liane asked on a recent post:
What drops are you taking for your thyroid? Is this something you take to help with the Fibro or have you been diagnosed with a thyroid condition also?
The answer is yes and no. It’s been difficult to tell if I have a thyroid condition just because it acts very similar to fibro fatigue and brain fog. I have had the test done and was told I had hyperthyroidism. This was especially confusing because my symptoms are more like hypothyroidism. The doctor suggested just having my thyroid removed and then going on the subsequent hormone replacement therapies for the rest of my life. I asked them to run the test again before taking such a huge step and my thyroid was normal. I don’t know what this means, the doctors really don’t know what this means. I just maintain the same mission that I’ve had since I got sick with fibromyalgia: keep as many organs in my body as possible. Although somedays the fibro fog is so bad that if they wanted to put sd cards in my brain, I’d be ok with that. (This is not an actual medical procedure but it should be.)
A friend recommended a natural supplement bio-thyroid. I’m not saying it’s a cure for anything, because it’s not. It does help me to have a little more energy. The biggest difference is that it used to be impossible for my body to regulate temperature. I could be wearing two sweaters while drinking tea in front of a fire place, wrapped in an electric blanket & I’d still be shivering. This was really taxing to my energy level, especially because I live in Utah where it’s always winter. So my slight increase of energy could be due to the fact that I’m not shivering all the time. Any other fibromites out there with mysterious, or not so mysterious, thyroid problems?
May 5th, 2009 at 9:42 am
I hope you will always be victorious in your life quest.
May 5th, 2009 at 10:09 pm
I was diagnose with Fibromyalgia, Rheumatoid Arthritis, Chronic Fatigue, and Chronic Back, plus other ailments. I was sick for 17 years. Using a Wheel Chair when I went out and watching the world go by from my bedroom chair. I am now 68 years old, and I act and feel like I am 35 years again. Doing things that I used to do when I was 35 and enjoying life. It is wonderful and it is due to a supplement that I started taking July 14, 2007. It did take over 6 months before the discomfort went away, and 15 months before I felt wonderful, and continual to feel that way. If you would like more information please check out my web site: http://www.dotzaeske8.stemtechbiz.com
Symptom Free, Dot
May 5th, 2009 at 10:48 pm
Oh yeah, the ol’ double whammy of thyroid and fibromyalgia! Was diagnosed w/ hypothyroid in 1993 and FMS in 1996. Recently have been turned down for 2 FMS medical trials because of the thyroid issue. My doc tells me I take the highest dose of thyroid med she has ever seen, and that my thyroid must be close to not functioning at all. But likewise I want to keep all the body parts I currently have, unless PROVEN to be diseased. And the 6,200′ altitude I live at in NM also leaves me shivering when it’s not always cold. Best of luck to you.
May 6th, 2009 at 2:58 pm
The doctors are all scratching their heads on my blood tests. It’s very confusing. I have numbers that contradict each other. Something about how this one number should show this other number at another level and that will say I’m either hypo or hyper-thyroid. More or less though, it makes it look like I kind of have both. THe doctors can’t sort it out and have basically left me to doing nothing about it. I’m frustrated because I don’t know what next step to take. I appreciate the info on here about some other supplements and I’ll look into those. But ultimately the doctors need to figure it out and I need to be more of an advocate for getting it resolved. It was all happening at a time when I was just ready for a break to not be poked & proded anymore. But I’m realizing now that I really need to get on this and push to get it resolved so I have an answer and a sense of what’s going on with my thyroid instead of thinking “oh, well know one knows, I guess that means it’ll be okay”.
Ughhhh.
May 13th, 2009 at 12:52 pm
I had my thyroid removed almost 4 years ago and then had a workplace accident( severe low back injury) which resulted in a diagnosis of fibro. Firstly, never ever let them remove your thyroid unless you have no other option, life without mine has been literal HELL. (see my blog)I was a nurse for 20 yrs and now will never work as a nurse again. I am looking for a job I can do from home(perhaps writing) but so far, not much luck. I have absolutely NO DOUBT that there is a connection between thyroid and fibro. Check out Dr. Lowe on the web http://www.drlowe.com/ as he is doing research on the subject.
http://www.thyroidscience.com/
I was a previously healthy, strong active person and now, I haven’t left the house in almost a year, except for doctor appointments. I have dreadful chronic pain and take enough narcotics to put down a large horse and some days, it still doesn’t work. I do my best to remain positive but sometimes it is tough. I am however, extremely grateful that there are people such as yourself online with the same issues. It lessens the burden some how to know others are in the same boat.
Take care,
Jeannette
http://missingmythyroid.blogspot.com/
September 8th, 2010 at 1:22 am
I found that with a thyroid diet you must eat more meals, specifically 6 mini-meals per day at around 300 calories each. This balances out a slow metabolism and sets the foundation for coping with an under-active thyroid.