Does fibro kill fun?
One of the worst parts of getting sick so young is that I don’t know what is part of growing up & what is caused by fibromyalgia. I know that grown ups have more responsibility & less time for fun.
I think that I’m a fairly happy person. I’m sarcastic, but happy. It occurred to me the other day that whenever someone says “Come on, it will be fun.” it usually ends up being painful. When I have extra energy it goes towards cleaning house or to try & get term life insurance. Basically just taking care of business. For me, fun is having enough time to nap or listening to really good music. Fun is taking care of my responsibilities. What do you think, does fibromyalgia kill fun or do you just have to redefine the word?
December 27th, 2008 at 12:56 pm
For one of your experiments I really, really wish you would try Mucinex for at least 2 weeks. Not the guiafenesin protocol, just two Mucinex(not D or DM, just the one with one ingredient – guiafenesin), one 1200mg in the AM, one 600mg in the PM. By accident I think my fibro may be cured. I went to the doctor for a sinus infection and he prescribed Mucinex among other things. I felt better then finished the Mucinex and immediately symptoms began to return. I went back on Mucinex and was better again. It’s changed my life, given me BACK my life. It won’t hurt(no side effects for me at all) and it might work for you. I’ve thought about you and worried whether to write you, but I’m doing it anyway. I want as many fibro-ites to have this chance at disease management as possible. God bless.
April 7th, 2011 at 5:04 am
Hi,
So I was diagnosed with fibro at age 26 and what you wrote about fibro killing the fun really spoke to me. I agree with what you said. Normally for me, when I’m feeling well is when I’m busy taking care of business. I feel like fibro ended up making me the most responsible 26 year old around. Sometimes I definitely get overwhelmed because it feels like I’m always taking care of business instead of having normal, healthy 26 year old fun. I basically don’t have a social life since my pain free (or less painful) time is spent taking care of my responsibilities. I’m a writer too. I figured that I might be able to make a living out of writing since I can’t work a regular job, but I’m still struggling to figure out how to make a living and actually earn an income. Any advice for a newbie writer?