I am a 28 year old princess with fibromyalgia. I am trying to manage my disease, find a job that I can do from home, & retain my general awesome-ness. Read about how I pay my bills writing articles. You can also look into where I write.

Terms
Categories
Archives
Blogroll
Other Fibro Blogs
Write for Money
«
»

What’s it like?

  • People often ask me how fibromyalgia feels. I usually reply with “not good”, or “it hurts”. I don’t really want anyone to understand the pain because that would mean that they would have to have experienced something horrible to relate to pain on this level. However, I want people to understand in a small way so they will know what they are asking of me, without me whining. Here is some brainstorming on describing what I feel like most days.
  • It feels like I’ve been hit by a car, & then the car went into reverse & ran over me again.
  • You know how they say gravity puts tons of weight on us so we don’t fly away into outer space? I can feel every bit of it pushing on me.
  • Tie a 20 lbs. weight to each of your arms & legs & then just “go out there & get going, & you’ll feel better”.
  • Remember how you always tell me about that time that you had the flu & you just put your mind to it & you got well? Imagine the worst that you have ever felt, multiply it by three, do that everyday year upon year, & then we can talk.

Tags: , , , ,

This entry was posted on Thursday, April 12th, 2007 at 9:51 am and is filed under Fibromyalgia Information. You can follow any responses to this entry through the RSS 2.0 feed. Both comments and pings are currently closed.

3 Responses to “What’s it like?”

  1. Alister Cameron, Blogologist (1 comments.) Says:
    April 18th, 2007 at 8:00 am

    Hi Sara,

    You’re a champion.

    My wife has has FM for as long as we’ve been married. Four kids later she’s still fighting hard and I don’t give near nearly enough credit for her determination.

    So I have some idea, I hope, of your challenges.

    Keep going :)

    Oh, and your blogging is great. I especially liked the 2 week series on getting going in blogging.

    -Alister

  2. The Patient Connection (1 comments.) Says:
    May 2nd, 2007 at 9:54 am

    Diagnosis of Fibromyalgia – have your say!

    We at The Patient Connection are currently running a research blog or online discussion on the subject the diagnosis of Fibromyalgia. We are seeking the opinions of people who have been through the process themselves or know someone who has been diagnosed.

    We are interested in your story and it would be great if you could share with us and other members of the Fibromyalgia community. If you have any advice for fellow suffers or would like to contribute links to other resources please fell free to do so

    To contribute please go to

    http://www.thepatientconnections.com/blog.asp?bid=&uid=42

    The blog is anonymous and easy to use. Instructions are given on the blog.

    Thanks for your help.

    Best wishes

    Belinda
    The Patient Connection
    Belinda.shale@thepatientconnections.com

    PS Please email me if you have any queries about the blog or any of our projects.

  3. matchedfightingfatigue.org » Patients More Knowledgeable Than Physicians ( comments.) Says:
    May 6th, 2007 at 9:54 pm

    [...] is truly amazing how intelligent CFS & Fibromyalgia patients are.  I say this because CFS & FM patients will often go to the doctor armed with [...]